Mission Statement

The primary function of Eye on Jacob is to fund research for treatment and, hopefully, a cure for Usher Syndrome. The secondary mission is to establish support groups for patients and families of patients with Usher Syndrome.

What is Usher Syndrome?

  • Usher Syndrome is a complicated genetic disease affecting children from birth
  • Usher Syndrome affects both hearing and vision
  • Many individuals with Usher Syndrome also have severe balance problems
  • Usher Syndrome is a degenerative disease usually resulting in total vision loss by the teen years

Who is Eye on Jacob?

The Eye on Jacob Foundation is a 501 c-3 nonprofit founded by Sonia Desormeaux in 2008. Sonia's youngest son, Jacob, suffers from Ushers Syndrome.

Board of Directors:

  • Sonia Desormeaux
  • Kent Desormeaux
  • Thomas Anthony Dowd, III
  • Bruce Hochman
  • Danielle Morello
  • Judge Eddie Sapire
  • Kelly Wietsma

How can you help?

We have launched a $5 million campaign to fund research for the next three years to advance discoveries in the treatment and cure for Usher Syndrome. Please share our enthusiasm by making a meaningful financial contribution to Eye on Jacob. You can make a difference to 12,000 children, and this program can make a difference to the world. Donate today.